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The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son

3.8/5 ( ratings)

Ian Brown’s son Walker is one of only about 300 people worldwide diagnosed with cardiofaciocutaneous syndrome—an extremely rare genetic mutation that results in unusual facial appearance, the inability to speak, and a compulsion to hit himself constantly. At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life.

Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is.

Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.

Language: English

Pages: 304

Format: Hardcover

Publisher: St. Martin's Press

Release: April 26, 2011

ISBN: 0312671830

ISBN 13: 9780312671839

The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son

3.8/5 ( ratings)

Ian Brown’s son Walker is one of only about 300 people worldwide diagnosed with cardiofaciocutaneous syndrome—an extremely rare genetic mutation that results in unusual facial appearance, the inability to speak, and a compulsion to hit himself constantly. At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life.

Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is.

Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.

Language: English

Pages: 304

Format: Hardcover

Publisher: St. Martin's Press

Release: April 26, 2011

ISBN: 0312671830

ISBN 13: 9780312671839

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